“As the family alone, we can’t make it a success.”: exploring the role of parents in their children’s successful use of alternative and augmentative communication

Tracks
Concurrent session M5
Alternative and Augmentative Communication (AAC)
Complex communication needs (CCN)
Disability
Monday, May 27, 2024
2:50 PM - 3:05 PM
River View Room 05

Overview

Andy Smidt and Gabrielle Landers


Details

⏫ Research insights
📚 Assumed knowledge of attendees: Foundational (new/casual familiarity with the topic e.g. treated a single case)


Presenter

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Dr Andy Smidt
Associate Professor
Southern Cross University

“As the family alone, we can’t make it a success.”: exploring the role of parents in their children’s successful use of alternative and augmentative communication

2:50 PM - 3:05 PM

Presentation summary

Purpose: In this presentation, we will present the results of our qualitative study in which we explored the lived experiences and perspectives of parents who consider that their child’s use of AAC is successful and analyse their perspectives with reference to the CCA. Whilst the benefits of AAC are acknowledged, current research suggests that individuals abandon their AAC. The Communication Capability Approach (CCA) proposes to reframe ‘abandonment’ of AAC, instead describing and validating the choice of users’ and families’ use or non use of AAC.

Materials & methods: Qualitative data was obtained by individually interviewing parents (n=9). Nvivo was used to inductively code the data which was analysed following a Thematic Analysis process, with reference to the CCA.

Results: Thematic Analysis revealed themes and subthemes in the data. Themes were then mapped to the CCA model to evaluate 1) the role of parents in AAC, and 2) whether parents’ experiences reflect that as described in the CCA. Exploration of the themes and their relation to the Communication Capability Approach demonstrated the importance of the role of parents as opportunity facilitators in their childrens’ journeys with AAC

Conclusion: This study highlights areas that SLPs can use when introducing an AAC system to a family that move from beyond just providing instruction for the person and family to use the device. Clinical practice in AAC should consider how speech pathologists can provide parents with the knowledge, skills, and support to advocate for their own child and overcome the barriers they are faced with along the way.

Key messages

1. Parents of children using AAC face challenges and need to be resilient and to understand the challenges ahead of them
2. The role of the SLP involves not only teaching the parent how to use the device but also how to manage a team of support workers, teachers and other professionals.
3. For a child to become a successful AAC user the parent will need to take on a range of roles and to prioritise their child’s communication.

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Andy is a senior lecturer at the University of Sydney in lifelong disability and AAC. Andy is co-editor of the clinical journal JCPSLP.
Agenda Item Image
Miss Gabrielle Landers
Speech Pathologist
NSW Health

“As the family alone, we can’t make it a success.”: exploring the role of parents in their children’s successful use of alternative and augmentative communication

2:50 PM - 3:05 PM

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Gabrielle is a new graduate speech pathologist, who conducted research in the area of AAC in collaboration with senior researchers.

Session chair

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Georgia Cunningham
Speech Pathology State Manager
Ors Group


Student volunteer(s)

Eddie Carey
Curtin University

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Alice Emmerton
Curtin University

The information contained in this program is current at of the time of publishing but is subject to changes made without notice.

Disclaimer: © (2024) The Speech Pathology Association of Australia Limited. All rights reserved.
Important Notice, please read: The views expressed in this presentation and reproduced in these materials are not necessarily the views of, or endorsed by, The Speech Pathology Association of Australia Limited ("the Association"). The Association makes no warranty or representation in relation to the content, currency or accuracy of any of the materials comprised in this presentation. The Association expressly disclaims any and all liability (including liability for negligence) in respect of use of these materials and the information contained within them. The Association recommends you seek independent professional advice prior to making any decision involving matters outlined in this presentation including in any of the materials referred to or otherwise incorporated into this presentation.

 

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