"I just want him to be understood": Parent perspectives of the long-term desired outcomes and experiences of early intervention for children with CAS
Tracks
Concurrent session T2
Childhood Apraxia of Speech (CAS)
Motor speech disorders
Speech sound disorders
| Tuesday, May 28, 2024 |
| 1:30 PM - 1:45 PM |
| Meeting Room 01 |
Overview
Chantelle Highman and Karen Wylie
Details
ā« Research insights
š Assumed knowledge of attendees: Intermediate (some previous learning/working knowledge of topic e.g. treated a few cases)
š Assumed knowledge of attendees: Intermediate (some previous learning/working knowledge of topic e.g. treated a few cases)
Presenter
Dr Chantelle Highman
Senior Lecturer
Curtin University
"I just want him to be understood": Parent perspectives of the long-term desired outcomes and experiences of early intervention for children with CAS
1:30 PM - 1:45 PMPresentation summary
Childhood Apraxia of Speech (CAS) impacts the child and their family in many ways, from direct impacts on the child's intelligibility, academic and social development, to secondary time, economic and well-being consequences for the whole family. Evidence-based practice in the treatment of CAS requires consideration of external evidence, clinician's clinical expertise, and client preferences. Recent research has indicated that SLPs use external evidence relating to treatment approaches as well as their clinical expertise to meet the needs of the individual child (Gomez et al., 2019, 2022; Randazzo, 2019). However, few studies have investigated parent/caregiver perspectives and preferences to help inform clinical practice (Rusiewicz et al., 2018). Objectives: This qualitative study explored parents' perspectives of 1) the long term desired successful outcomes for children with CAS, and 2) early intervention services received in the first 3 years of life. Methods: Parents of children (3;0-6;11, n=12) with a confirmed diagnosis of CAS participated in a 45-60 minute semi-structured online interview conducted by an experienced interviewer. Reflexive Thematic Analysis (Braun & Clarke 2006; 2019) was used to analyse the data. Results: This presentation will explore key resultant themes and implications for the ways in which services are delivered. Conclusions: Deepening understanding of parent perspectives about existing services and the aspirations of families can support speech pathologists to develop services in ways that are increasingly responsive to the needs of families of children with CAS. Results provide valuable insights to inform clinical practice.
Key messages
At the conclusion of this presentation, attendees will take away:
1. An understanding of parents' perspectives of the long-term desired outcomes for children with CAS,
2. An understanding of parents' perspectives of early intervention for children with CAS, and
3. An understanding of how to incorporate these findings in clinical practice
1. An understanding of parents' perspectives of the long-term desired outcomes for children with CAS,
2. An understanding of parents' perspectives of early intervention for children with CAS, and
3. An understanding of how to incorporate these findings in clinical practice
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Dr Chantelle Highman is a speech pathologist and academic in the Curtin School of Allied Health. Chantelleās research focuses on complex speech sound disorders such as childhood apraxia of speech, infant vocalisations, and early intervention for speech difficulties. She is currently an Associate Investigator on the NHMRC funded Dynamic Therapy for Apraxia RCT and also supervises PhD students and honours students on topics related to speech development and disorders. Chantelleās research incorporates parentsā perspectives of early intervention and has a strong focus on research translation.
Dr Karen Wylie
Lecturer
Curtin University
"I just want him to be understood": Parent perspectives of the long-term desired outcomes and experiences of early intervention for children with CAS
1:30 PM - 1:45 PM**********
Karen is a researcher, clinician, and educator in the field of speech pathology. This included 15 years living and working in sub-Saharan Africa, including Mali, Senegal, Zambia and Ghana. In Ghana, she was part of a team that commenced the first graduate entry Master's programme for speech pathology education at the University of Ghana. Karen's research interests include service delivery and service accessibility, particularly within underserved communities, understanding and improving the participation of people with disabilities in the community, population health and prevention of communication disabilities, and client engagement /therapeutic alliance in allied health services.
Session chair
Lisa Furlong
Student volunteer(s)
Emily Candy
Curtin University
Sophia Jo
Curtin University
The information contained in this program is current at of the time of publishing but is subject to changes made without notice.
Disclaimer: © (2024) The Speech Pathology Association of Australia Limited. All rights reserved.
Important Notice, please read: The views expressed in this presentation and reproduced in these materials are not necessarily the views of, or endorsed by, The Speech Pathology Association of Australia Limited ("the Association"). The Association makes no warranty or representation in relation to the content, currency or accuracy of any of the materials comprised in this presentation. The Association expressly disclaims any and all liability (including liability for negligence) in respect of use of these materials and the information contained within them. The Association recommends you seek independent professional advice prior to making any decision involving matters outlined in this presentation including in any of the materials referred to or otherwise incorporated into this presentation.
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