“We empower them to have the voice and pass it on”: A co-design project to meet the education needs of people with right hemisphere stroke and those who support them.
Tracks
Concurrent session M2
Acquired brain injury/traumatic brain injury (ABI/TBI)
Cognitive communication difficulties
Stroke
| Monday, May 27, 2024 |
| 10:50 AM - 11:05 AM |
| Meeting Room 01 |
Overview
Ronelle Hewetson
Details
⏫ Research insights
📚 Assumed knowledge of attendees: Intermediate (some previous learning/working knowledge of topic e.g. treated a few cases)
📚 Assumed knowledge of attendees: Intermediate (some previous learning/working knowledge of topic e.g. treated a few cases)
Presenter
Dr Ronelle Hewetson
Senior Lecturer
Griffith University
“We empower them to have the voice and pass it on”: A co-design project to meet the education needs of people with right hemisphere stroke and those who support them.
10:50 AM - 11:05 AMPresentation summary
In this presentation we demonstrate how clinicians and clients can work together to meet the Clinical Guidelines for Stroke Management recommendation that tailored information for all people with stroke and their families should be provided. Few educational resources are available that are uniquely focused on the cognitive communication difficulties (CCD) that arise following right hemisphere (RH) stroke.
We used a mixed method co-design process that included three phases, starting with information gathering by way of a literature review on education needs in the RH stroke population and a survey of speech pathologists with experience working with people with RH stroke. In phase two, co-design workshops brought together people with RH stroke, their family members, and speech pathologists, to share experiences and preferences related to the content, timing and method of accessing or providing education about CCD. Lastly, phase three obtained user acceptance data from healthcare consumers and providers about the education resource.
The results of our study revealed the profound need for educational resources that can be accessed at any time during stroke recovery and that is specific to the RH stroke population. Healthcare professionals need resources that can be modified to allow for individualised information provision to those affected by RH stroke. Family members and individuals with RH stroke need information about the unique features of CCD that arise after RH stroke and strategies that can be implemented at home to support return to valued activities and relationships.
In conclusion our presentation highlights the important role that speech pathologists can play in empowering friends and family members of people with RH stroke through evidence-informed information provision that meets their unique needs.
We used a mixed method co-design process that included three phases, starting with information gathering by way of a literature review on education needs in the RH stroke population and a survey of speech pathologists with experience working with people with RH stroke. In phase two, co-design workshops brought together people with RH stroke, their family members, and speech pathologists, to share experiences and preferences related to the content, timing and method of accessing or providing education about CCD. Lastly, phase three obtained user acceptance data from healthcare consumers and providers about the education resource.
The results of our study revealed the profound need for educational resources that can be accessed at any time during stroke recovery and that is specific to the RH stroke population. Healthcare professionals need resources that can be modified to allow for individualised information provision to those affected by RH stroke. Family members and individuals with RH stroke need information about the unique features of CCD that arise after RH stroke and strategies that can be implemented at home to support return to valued activities and relationships.
In conclusion our presentation highlights the important role that speech pathologists can play in empowering friends and family members of people with RH stroke through evidence-informed information provision that meets their unique needs.
Key messages
1. There are unmet education needs about the cognitive communication changes that occur after a right hemisphere stroke. People living with right hemisphere stroke and their family members report limited understanding of the unique ways in which communication may change of after a right hemisphere stroke, and highlight challenges in sourcing evidence-based information that is uniquely focused on cognitive communication difficulties.
2. Healthcare professionals need resources that can be individualised when working with people with right hemisphere stroke who are diverse in their clinical presentation. Professionals highlight challenges related to current timing of information provision that may occur before the individual with right hemisphere stroke is aware of the changes in their own communication and the potential impact of this on their ability to return to activities and relationships.
3. People with right hemisphere stroke and their family members need a range of different types of information, both verbal and written, at different times during recovery from stroke. They highlight the need for continued access to evidence-based information after discharge from speech pathology services as longer term impacts of right hemisphere stroke might not be apparent during the acute phase post stroke. Spouses of individuals with right hemisphere stroke would value information on strategies to support the cognitive and communication changes that occurs after right hemisphere stroke that can be share easily with extended family members and friends.
2. Healthcare professionals need resources that can be individualised when working with people with right hemisphere stroke who are diverse in their clinical presentation. Professionals highlight challenges related to current timing of information provision that may occur before the individual with right hemisphere stroke is aware of the changes in their own communication and the potential impact of this on their ability to return to activities and relationships.
3. People with right hemisphere stroke and their family members need a range of different types of information, both verbal and written, at different times during recovery from stroke. They highlight the need for continued access to evidence-based information after discharge from speech pathology services as longer term impacts of right hemisphere stroke might not be apparent during the acute phase post stroke. Spouses of individuals with right hemisphere stroke would value information on strategies to support the cognitive and communication changes that occurs after right hemisphere stroke that can be share easily with extended family members and friends.
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Ronelle Hewetson is a speech pathologist who is passionate about supporting individuals with acquired communication disorders and preparing the future workforce to be not only competent but also passionate about improving equity of access to speech pathology services. Ronelle is currently employed at Griffith University and worked as a lecturer at the University of Cape Town South Africa prior to moving to Australia. Ronelle has a particular interest in cognitive-communication disorders secondary to traumatic brain injury and right hemisphere stroke. Her current research projects include addressing education needs of people affected by right hemisphere stroke, developing screening tools to detect cognitive-communication disorders, and influencing student interests in pursuing careers that specialise in service provision to older Australians. Ronelle is a founding member of the International Right Hemisphere Collaborative and a member of the ANCDS writing group on right hemisphere damage.
Session chair
Deborah Hersh
Professor, Speech Pathology
Curtin University
Student volunteer(s)
Eddie Carey
Curtin University
Tanvi Patel
Curtin University
The information contained in this program is current at of the time of publishing but is subject to changes made without notice.
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