Predicting the risk of respiratory disease in cerebral palsy: The development of an online risk prediction screening tool.
Tracks
Concurrent session T5
Cerebral Palsy
Collaboration
Disability
Dysphagia
Paediatric/Infant
Professional practice
Research
| Tuesday, May 28, 2024 |
| 11:10 AM - 11:25 AM |
| River View Room 05 |
Overview
Lisa Moshovis
Details
⏫ Research insights
📚 Assumed knowledge of attendees: Foundational (new/casual familiarity with the topic e.g. treated a single case)
📚 Assumed knowledge of attendees: Foundational (new/casual familiarity with the topic e.g. treated a single case)
Presenter
Mrs Lisa Moshovis
Clinical Lead - Mealtimes Senior Speech Pathologist
Ability WA
Predicting the risk of respiratory disease in cerebral palsy: The development of an online risk prediction screening tool.
11:10 AM - 11:25 AMPresentation summary
Introduction: Cerebral Palsy (CP) is a motor disability, but respiratory disease is the leading cause of death in this population across age groups. We developed an interactive risk prediction tool to identify which individuals with CP are at risk of respiratory hospital admissions. Methods: Data was acquired using the CP Registry in Western Australia (WA). Questionnaires were sent to registered participants and then linked to hospital data prospectively for 5 years, with respiratory admissions identified using International Classification of Disease Codes (ICD-10). Risk prediction was developed using univariable and multivariable models. Results: The WA cohort (n=482, 40% female, mean age 10.8 (SD 5.9)) produced 9 statistically significant risk factors (all p<0.001). 6 risk factors were potentially modifiable: oropharyngeal dysphagia, respiratory symptoms with meals, seizures, frequent respiratory symptoms, gastroesophageal reflux disease (GORD) and nightly snoring. The other 3 non-modifiable ‘red flag’ risk markers included: Gross Motor Function Classification System (GMFCS) Level V classification, at least one respiratory admission in the preceding year or, two or more courses of antibiotics in the past 12 months. Conclusion: We can now predict the risk of respiratory hospital admissions in individuals with CP. Most risk factors are potentially modifiable. Our risk prediction tool (hosted online https://www.telethonkids.org.au/our-research/research-topics/cerebral-palsy/cerebral-palsy-respiratory-health/) provides the opportunity to screen and identify those with CP most at risk of respiratory diseases to advocate for coordinated evidenced-based multidisciplinary management. Our respiratory risk checklist is being utilised nationally and internationally. Oropharyngeal dysphagia (as indicated by texture modifications, use of enteral feeding or choking/coughing on saliva) was the strongest modifiable risk factor and is an important predictor of respiratory morbidity warranting early identification, management and surveillance.
Key messages
Key take away messages from this presentation include:
1) understanding the robustness of the research that has gone into developing and validating this interactive free online resource tool;
2) how to access and interpret the online respiratory risk factor checklist;
3) translating this screening tool into clinical practice.
1) understanding the robustness of the research that has gone into developing and validating this interactive free online resource tool;
2) how to access and interpret the online respiratory risk factor checklist;
3) translating this screening tool into clinical practice.
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Lisa is the Clinical Lead in Mealtimes at Ability WA and a Senior Speech Pathologist with 20 years clinical experience. She works closely with individuals with a disability, across the lifespan, who have swallowing, feeding or mealtime issues. Lisa is a strong advocate for practicing person centred thinking, planning and doing. She weaves research into her clinical role as she strives for excellence to best support individuals achieve their goals and improve quality of life. Lisa has contributed to six journal articles related to identifying respiratory risk factors, reducing respiratory related hospitalisations and the prevention and management of respiratory disease in young people with cerebral palsy. Lisa has a passion for further learning and is always innovative in her clinical role by incorporating contemporary evidence based practice. She is a highly sort after leader within the disability sector.
Session chair
Mary Claessen
Senior Advisor Professional Standards
Speech Pathology Australia
Student volunteer(s)
Lillian Hennessy-Ellis
Student
Curtin University
Tanvi Patel
Curtin University
The information contained in this program is current at of the time of publishing but is subject to changes made without notice.
Disclaimer: © (2024) The Speech Pathology Association of Australia Limited. All rights reserved.
Important Notice, please read: The views expressed in this presentation and reproduced in these materials are not necessarily the views of, or endorsed by, The Speech Pathology Association of Australia Limited ("the Association"). The Association makes no warranty or representation in relation to the content, currency or accuracy of any of the materials comprised in this presentation. The Association expressly disclaims any and all liability (including liability for negligence) in respect of use of these materials and the information contained within them. The Association recommends you seek independent professional advice prior to making any decision involving matters outlined in this presentation including in any of the materials referred to or otherwise incorporated into this presentation.
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