Stigma and the right to rehabilitation for people with dementia – Development of an online learning package for health professionals

Tracks
6
Adult
Advocacy
Aged care
Dementia
Multidisciplinary practice
Friday, June 13, 2025
11:20 AM - 11:30 AM

Overview

Kym Torresi


Details

⏫ Research insights
⏲️ 11.20am - 11.40am
⌛ 20-minutes
📚 Assumed knowledge of attendees: Foundational (new/casual familiarity with the topic e.g. treated a single case)


Presenter

Agenda Item Image
Ms Kym Torresi
Senior Advisor, Aged Care
Speech Pathology Australia | National Centre for Healthy Ageing, Monash University

Stigma and the right to rehabilitation for people with dementia – Development of an online learning package for health professionals

11:20 AM - 11:40 AM

Presentation summary

People living with dementia face barriers to accessing rehabilitation despite evidence of its clinical benefit , clinical guidelines recognising it as best practice and calls from people with dementia themselves for enhanced access to rehabilitation as part of their post-diagnostic pathway. Despite speech pathologists being uniquely placed due to their expertise in neurogenic and neurodegenerative communication and swallowing impairments, they are often not routinely involved in offering rehabilitation services, particularly to meet communication needs . One of the recommendations of a co-design process undertaken with people with lived experience of dementia was to develop an online learning package for health professionals themselves to enhance their knowledge about dementia rehabilitation and to challenge stigma . This project aimed to- develop an online multidisciplinary allied health “Introduction to Dementia Rehabilitation Course” with an anti-stigma and rights-based approach - review changes in course participants’ attitudes, confidence and knowledge regarding dementia rehabilitation. Over 500 health workers (including allied health professionals, practice nurses, aged care assessors, and case managers) from across Australia enrolled in a pilot of the ten-module online course, developed by a team of allied health professionals and people with lived experience of dementia. Completion rates over 70% were achieved. Feedback from participants has highlighted that the course helped them to reframe attitudes, identify ways to improve practice and advocate for changes in service access. Detailed evaluation of course outcomes will analyse changes in participant attitudes, confidence and knowledge. Future goals include developing an accessible course for the whole community, including people living with dementia.Challenging stigma and enhancing knowledge through online training can positively influence the attitudes of health professionals about dementia rehabilitation. Speech pathologists will be challenged to reflect on their own confidence and attitudes in this area and respond to the unmet needs of people living with dementia.

Refrences

1.Laver, K. E., Crotty, M., Low, L.-F., Clemson, L., Whitehead, C., McLoughlin, J., Swaffer, K., & Cations, M. (2020). Rehabilitation for people living with dementia: a multi-method study examining knowledge and attitudes. BMC Geriatrics, 20(1), 531. https://doi.org/10.1186/s12877-020-01940-x 2.Cations, M., May, N., Crotty, M., Low, L.F., Clemson, L., Whitehead, C., McLoughlin, J., Swaffer, K. & Laver, K.E. Health Professional Perspectives on Rehabilitation for People With Dementia, The Gerontologist, Volume 60, Issue 3, April 2020, Pages 503 -512, https://doi.org/10.1093/geront/gnz0073.Volkmer, A., Spector, A., Warren, J. D., & Beeke, S. (2018). Speech and language therapy for primary progressive aphasia: Referral patterns and barriers to service provision across the UK. Dementia (London), 19(5), 1349-1363. https://doi.org/10.1177/1471301218797240 Low, L. F., & Laver, K. (Eds.) (2021). Dementia Rehabilitation: Evidence-Based Interventions and Clinical Recommendations. Elsevier. https://doi.org/10.1016/C2018-0-04195-X 1.WHO (2023) Package of interventions for rehabilitation: module 3: neurological https://www.who.int/publications/i/item/9789240071131 2. Guideline Adaptation Committee. Clinical Practice Guidelines and Principles of Care for People with Dementia. Sydney (Australia) 2016 https://cdpc.sydney.edu.au/wp-content/uploads/2019/06/CDPC-Dementia-Guidelines_WEB.pdf 3. Australian Dementia Network. Memory and Cognition Clinic Guidelines: National service guidelines for specialised dementia and cognitive decline assessment services in Australia. Sydney (Australia) Australian Dementia Network, Version 2; 2024 https://memoryandcognitionclinic.com.au/wp-content/uploads/2024/05/ADNeT_MC_Clinic_Guidelines_Version_2.pdf Laver, K.E., Crotty, M., Low, LF. et al. Rehabilitation for people with dementia: a multi-method study examining knowledge and attitudes. BMC Geriatr 20, 531 (2020). https://doi.org/10.1186/s12877-020-01940-x Folder, N., Cartwright, J., Torresi, K., Taylor, C., Conway, E., Murray, J., Caruana, A. & Power, E. (2024). Stepping Back into The Dementia Space: A Call to Arms to Reaffirm the Essential Role of Speech Language Pathology In Supporting Communication Impairments In Dementia. Journal of Clinical Practice in Speech-Language Pathology. 24. 67-72. 10.1080/22087168.2022.12370357 Layton, N., Devanny, C., Hill, K., Swaffer, K., Russell, G., Low, L.-F., Lee, D.-C.A., Cations, M., Skouteris, H., MC O'Connor, C., Collyer, T.A., Neves, B.B., Andrew, N.E., Haines, T., Srikanth, V.K., Petersen, A. and Callisaya, M.L. (2024), The Right to Rehabilitation for People With Dementia: A Codesign Approach to Barriers and Solutions. Health Expectations, 27: e70036. https://doi.org/10.1111/hex.70036

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Kym Torresi is a speech pathologist with over 30 years clinical experience primarliy working with adults across settings. She is currently the Senior Advisor Aged Care at Speech Pathology Australia, and a Senior Research Consultant at the National Centre for Healthy Ageing at Monash University

The information contained in this program is current at of the time of publishing but is subject to changes made without notice.

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